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A Future Without Crisis:
                          Adult Autism Services
                                 Reform
                           Advocated for by Noël Scriffiny




Monday, April 25, 2011
Table Of Contents
                     • What’s Going on Now?...................................3
                     • Who’s Impacted?...............................................4
                     • How Much?........................................................5
                     • Solutions.............................................................6
                     • References..........................................................7

Monday, April 25, 2011
What’s Going on Now?
            •      The focus of this presentation is on the impact of adult services
                   for those whom have moderate to severe Autism Spectrum
                   Disorder(ASD).


            •      Autism Spectrum Disorder (ASD) rates are 10 times greater
                   than they were fifteen years ago (The New Jersey Center for
                   Outreach and Services for the Autism Community, 2006). .


            •      Statistics released by the CDC, for 2009, state that 1 in every
                   110 children has Autism Spectrum Disorder. Along with that,
                   70% of the US population with ASD is under the age of 14
                   (Lainer, 2010, p. 1).


            •      With ASD on the rise majority of ASD population being under
                   14, there will be a substantial increase in services needed as that
                   population enters adulthood.


            •      Overall,Vocational Rehabilitation(VR) services have reported a
                   121 percent increase from 2002 to 2006 in Autism cases
                   (Cimera, 2009).
                                                                                         http://www.cdc.gov/ncbddd/autism/data.html




Monday, April 25, 2011
Who’s Impacted?
              •     As childhood rates of ASD continue to climb, so will follow the adults rates with ASD. This will affect their
                    ability to receive the services they need.


              •     The following services will, if not already, we impacted:


                    •    Housing(such as residential, supported living, and group homes)


                    •    Vocational Rehabilitation Services(Assisting in job training/finding for people with disabilities)


                    •    Qualified behavioral specialists


                    •    Social Security- increased cost for adult services, i.e. housing


                    •    Medicaid/Medical- increased cost for medical coverage


                    •    Social Services-need for more adult social workers




Monday, April 25, 2011
How Much?
               •         It is estimated that the “societal cost” for an individual with
                         ASD is 3.2 million dollars over their lifetime along with 35
                         billion for the entire population with the condition (Michael L.
                         Ganz, 2007, p. 348).


               •         Because many new types of services start at age 23-27, the
                         startup cost of the services are high (Michael L. Ganz, 2007).


               •         when the influx of children with ASD reach adulthood there will
                         be a drastic increase in societal costs for the initial setup of
                         adult services and evaluations.
                                                                                            (Michael L. Ganz, 2007)




                                                                                            A compromise between cost effectiveness
                                                                                              and increased services to support the
                                                                                             growing generation of adults with ASD
                                                                                                        needs to be made.




                                 (Michael L. Ganz, 2007)




Monday, April 25, 2011
Solutions
                                                                  •   Continued support of Intermediate Care
                                                                      Facilities – Mental Retardation for severe
                                                                      cases of ASD


                                                                  •   Allocate housing funding to proposed group
                                                                      home model with a residential size limit of 4-
                                                                      receive the individualized support needed to
                                                                      gain independent living skills


                                                                  •   Increased group homes- stop long waiting
                                                                      lists


                                                                  •   Increase funding to Vocational Rehabilitation
                                                                      services- more work means less cost
            (Autism Services of Mecklenburg County, Inc.)


            Let’s prepare for the the future, for a place to call home and an opportunity to gain
                                                independence.




Monday, April 25, 2011
References
                         Autism Services of Mecklenburg County, Inc. Residential Services. 2011. http://www.asmcinc.com/residential_supports.php.

                         Center for Disease Control and Prevention. (2010, June 24). Autsim Spectrum Disorders. Center for Disease Control and
                         Prevention: http://www.cdc.gov/ncbddd/autism/index.html

                         Cimera, R. (2009). The costs of services and employment outcomes achieved by adults with autism in the US. autism , 285–302.

                         Lainer, P. F. (2010). Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon. Journal of
                         Contemporary Psychotherapy , 37-45.

                         Michael L. Ganz, M. P. (2007). The Lifetime Distribution of the Incremental Societal Costs of Autism. Archives of Pediatrics and
                         Adolescent Medicine , 343-349.

                         The Legislative Blue Ribbon Commision on Autism. (2006, Spetember). A comprehesive service system for adults with autism
                         spectrum disorders. California State Senate: http://senweb03.senate.ca.gov/autism/documents/meetingsevents/
                         Revised_COMPREHENSIVE%20SERVICES%20FOR%20ADULTS.pdf

                         The New Jersey Center for Outreach and Services for the Autism Community. (2006). Meeting the needs of adults with Autism:
                         a blueprint for the future..




Monday, April 25, 2011

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Adult with ASD Services Reform

  • 1. A Future Without Crisis: Adult Autism Services Reform Advocated for by Noël Scriffiny Monday, April 25, 2011
  • 2. Table Of Contents • What’s Going on Now?...................................3 • Who’s Impacted?...............................................4 • How Much?........................................................5 • Solutions.............................................................6 • References..........................................................7 Monday, April 25, 2011
  • 3. What’s Going on Now? • The focus of this presentation is on the impact of adult services for those whom have moderate to severe Autism Spectrum Disorder(ASD). • Autism Spectrum Disorder (ASD) rates are 10 times greater than they were fifteen years ago (The New Jersey Center for Outreach and Services for the Autism Community, 2006). . • Statistics released by the CDC, for 2009, state that 1 in every 110 children has Autism Spectrum Disorder. Along with that, 70% of the US population with ASD is under the age of 14 (Lainer, 2010, p. 1). • With ASD on the rise majority of ASD population being under 14, there will be a substantial increase in services needed as that population enters adulthood. • Overall,Vocational Rehabilitation(VR) services have reported a 121 percent increase from 2002 to 2006 in Autism cases (Cimera, 2009). http://www.cdc.gov/ncbddd/autism/data.html Monday, April 25, 2011
  • 4. Who’s Impacted? • As childhood rates of ASD continue to climb, so will follow the adults rates with ASD. This will affect their ability to receive the services they need. • The following services will, if not already, we impacted: • Housing(such as residential, supported living, and group homes) • Vocational Rehabilitation Services(Assisting in job training/finding for people with disabilities) • Qualified behavioral specialists • Social Security- increased cost for adult services, i.e. housing • Medicaid/Medical- increased cost for medical coverage • Social Services-need for more adult social workers Monday, April 25, 2011
  • 5. How Much? • It is estimated that the “societal cost” for an individual with ASD is 3.2 million dollars over their lifetime along with 35 billion for the entire population with the condition (Michael L. Ganz, 2007, p. 348). • Because many new types of services start at age 23-27, the startup cost of the services are high (Michael L. Ganz, 2007). • when the influx of children with ASD reach adulthood there will be a drastic increase in societal costs for the initial setup of adult services and evaluations. (Michael L. Ganz, 2007) A compromise between cost effectiveness and increased services to support the growing generation of adults with ASD needs to be made. (Michael L. Ganz, 2007) Monday, April 25, 2011
  • 6. Solutions • Continued support of Intermediate Care Facilities – Mental Retardation for severe cases of ASD • Allocate housing funding to proposed group home model with a residential size limit of 4- receive the individualized support needed to gain independent living skills • Increased group homes- stop long waiting lists • Increase funding to Vocational Rehabilitation services- more work means less cost (Autism Services of Mecklenburg County, Inc.) Let’s prepare for the the future, for a place to call home and an opportunity to gain independence. Monday, April 25, 2011
  • 7. References Autism Services of Mecklenburg County, Inc. Residential Services. 2011. http://www.asmcinc.com/residential_supports.php. Center for Disease Control and Prevention. (2010, June 24). Autsim Spectrum Disorders. Center for Disease Control and Prevention: http://www.cdc.gov/ncbddd/autism/index.html Cimera, R. (2009). The costs of services and employment outcomes achieved by adults with autism in the US. autism , 285–302. Lainer, P. F. (2010). Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon. Journal of Contemporary Psychotherapy , 37-45. Michael L. Ganz, M. P. (2007). The Lifetime Distribution of the Incremental Societal Costs of Autism. Archives of Pediatrics and Adolescent Medicine , 343-349. The Legislative Blue Ribbon Commision on Autism. (2006, Spetember). A comprehesive service system for adults with autism spectrum disorders. California State Senate: http://senweb03.senate.ca.gov/autism/documents/meetingsevents/ Revised_COMPREHENSIVE%20SERVICES%20FOR%20ADULTS.pdf The New Jersey Center for Outreach and Services for the Autism Community. (2006). Meeting the needs of adults with Autism: a blueprint for the future.. Monday, April 25, 2011